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Walk-N-Roll for Spina Bifida Helps Enrich Lives

Walk-N-Roll for Spina Bifida Helps Enrich Lives
Posted on Monday, September 19, 2016 by Katie Reinhardt


On January 12th, 2011 my baby cousin, Brooklyn, was born and what a rocky start it was for her and her parents. Brooklyn was born with a hole in her spine, known as Spina Bifida. It is a birth defect in the baby’s backbone that does not form normally. The spinal cord can be damaged and cause disabilities such as loss of feeling in the feet, no movement in the legs, loss of bladder control, etc.

Just hours after she was born she had her first surgery to repair her spine. The next surgery took place when she was just 4 days old to place a reservoir above her brain so the surgeons could remove the excess CSF (cerebral spinal fluid). On January 27th Brooklyn had her third surgery; this time they placed her permanent shunt which drains the excess CSF from her ventricles to her abdomen. On February 2nd, after 23 very long days in the NICU her parents finally got to take their precious little angel home! What a happy day it was!

Brooklyn is now 5 years old, doing great, and is a very happy girl. She has braces for her legs and can walk with her walker when she is wearing them. A couple months ago she has even been able to walk without her braces or crutches! She also loves cruising around in her purple/pink wheelchair and her new hot pink Zip Zac 2 chair! We are so proud of her as she continues to surprise us daily! What a blessing we have been given!

The Spina Bifida Association of Iowa, along with many other groups, have helped enrich my cousin’s life for years to come. They have provided funding for her to get her crutches and her favorite hot pink Zip Zac. Come walk with Brooklyn and I at Principal Park on October 23 at the annual Walk N Roll for Spina Bifida event or donate to our team page, Team Dane, to help those with Spina Bifida live a fun and joyful life.